Lung cancer is personally of particular interest to me since my mother died from the non-small cell lung cancer, she was a non-smoker. (see Personal Stories, “Frieda’s Story) Interestingly, lung cancer is more prevalent among women who are non-smokers, and yet not enough is done to generate awareness of this important fact. More attention is placed on breast cancer and ovarian cancer.
While I was a caregiver for my mom I didn’t have time to do all the research I wanted to do. At the time I wish I knew about some of the services and advocacy these organizations provide. Now I hope I can assist other caregivers and family members – we need to share what we learn to help others.
Lung cancer, of all the cancers, is the greatest killer. Through the years, it has not received the attention it truly deserved in fund-raising and research, primarily because of biases- it was considered a smoker’s cancer. It is a frequently misunderstood cancer. Non-smokers get lung cancer!! In fact, lung cancer kills more women annually than breast cancer, colorectal cancer, or any other type of cancer.act – particularly non-smokers! (Link to “Relevant Articles” on lung cancer)
We all need to help generate public awareness and increase research funding to help find safe screening processes, more supportive care services, and perhaps a cure.
American Lung Association
1301 Pennsylvania Ave. NW
Washington, DC 20004
1-800-LUNGUSA (1-800-586-4872)
http://www.lungusa.org
The American Lung Association is a national organization dedicated to the prevention of lung diseases. The association provides educational materials on lung health, treatment decisions and research, including information related to lung cancer. It also provides smoking cessation support programs and information on the dangers of smoking and secondhand smoke. The American Lung Association advocates for anti-smoking laws and for tougher penalties for tobacco companies. The association has affiliate branches nationwide and operates a toll-free information hotline.
The Beverly Fund is a national nonprofit organization dedicated to lung cancer awareness, patient support, early detection and research. The Beverly Fund’s mission is to put a face on lung cancer and give a voice to those who have been affected by lung cancer. They want to find a cure for lung cancer by finding the causes of lung cancer and provide aid in research that will improve the quality of life of those suffering with lung cancer. In addition, they are strong advocates in early detection to help prohibit people from ever getting lung cancer.
The Bonnie J. Addario Lung Cancer Foundation
www.lungcancerfoundation.org
The Bonnie J. Addario Lung Cancer Foundation is a great example of patient activism. Bonnie Addario, a lung cancer patient, discovered that institutional support and education for lung cancer patients was virtually non-existent. With help from her friends, Bonnie Addario is currently breaking new ground – she’s trying to invent a new institutional framework for cancer research. Patient activists have raised funds for research, increased access to experimental therapies, redesigned clinical trial protocols, and accelerated regulatory approvals for new drugs.
This organization works with a diverse group of physicians, organizations and individuals to identify solutions and make timely and meaningful change through research, early detection, education, prevention, and treatment.
LUNGevity Foundation
435 N. LaSalle Street, Suite 310
Chicago, IL 60654
1-312-464-0716
LUNGevity Foundation is the only organization in the United States dedicated exclusively to funding lung cancer research. It is the largest private funder of lung cancer research with a world-renowned scientific advisory board, and the largest grassroots and lung cancer support networks. These networks offer 24-hour, peer-to-peer support both online and through a phone buddy program, education and help understanding specific lung cancer medical issues from medical experts, and an awareness-raising advocacy program.
Lung Cancer Alliance
888 16th St, NW, Suite 150
Washington, DC 20006
(800) 298-2436 (U.S. only)
202-463-2080
For help or support: info@lungcanceralliance.org
http://www.lungcanceralliance.org
The Lung Cancer Alliance is dedicated solely to advocating for people living with lung cancer or those at risk for the disease. They offer a wide range of support options and patient education focused on helping people directly affected by lung cancer. They provide information on clinical trials, treatment options and patient advocacy. They offer peer to peer support for people with lung cancer and their caregivers, and online support community, Lung Love Link.
Their initiatives aim to educate public policy leaders of the need for greater resources for lung cancer research while changing the face of lung cancer and reducing the stigma associated with the disease.
Lung Cancer Caring Ambassadors Program
The mission of the Lung Cancer Caring Ambassadors Program is to encourage people with lung cancer to take an active role in their own healthcare, and to help others with lung cancer.
Lung Cancer Research Foundation
845 Third Avenue, 6th Floor
New York, NY 10022
(646) 290-5154
Email: info@lungfund.org
www.lungcancerresearchfoundation.org
The mission of the Lung Cancer Research Foundation is to support national research studies and activities focused on developing innovative strategies for better treatments, screening, and prevention of all cancers of the lung.
Mesothelioma Center – (For A Rare Lung Cancer Caused by Abestos Exposure)
Mesothelioma is a rare cancer that is caused by asbestos exposure. The Mesothelioma Center:
- Provides informational literature such as a mesothelioma packet and books.
- Gets patients connected with top doctors & treatment centers locally to them.
- Assist veterans with VA benefits and claims.
- Assist patients and their families with financial assistance.
- Provide a monthly support group.
- All of their services are free of charge.
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For Public Outreach and the latest on Mesothelioma Awareness go to the Mesothelioma Center at Asbestos.com
National Cancer Institute – Lung Cancer
http://www.cancer.gov/cancertopics/types/lung
The National Cancer Institute coordinates the National Cancer Program, which conducts and supports research, training, health information dissemination, and other programs with respect to the cause, diagnosis, prevention, and treatment of cancer, rehabilitation from cancer, and the continuing care of cancer patients and the families of cancer patients.
National Lung Cancer Partnership
222 North Midvale Blvd., Suite 6
Madison, WI 53705
(608) 233-7905
http://www.nationallungcancerpartnership.org
National Lung Cancer Partnership (formerly Women Against Lung Cancer) is the only national lung cancer organization founded by physicians and researchers. They work to increase awareness about lung cancer, provide information for lung cancer patients, and raise funds for treatment. The Partnership is working to help patients live longer and better through research, awareness and advocacy.
Uniting Against Lung Cancer
27 Union Square West, Suite 304
New York, NY 10003
(212) 627-5500
http://unitingagainstlungcancer.org
Uniting Against Lung Cancer (formerly Joan’s Legacy) is committed to fighting lung cancer by funding innovative research into the diagnosis and treatment of lung cancer, including in never smokers, and increasing awareness of the disease and those affected by it.
See the charts below. The statistics speak for themselves.
Please share your experiences with these organizations and make recommendations. We welcome feedback and will update this website/blog accordingly. Rate how well these societies and organizations help you. We want to know!
